Tuesday, May 8, 2012

Team Sophia Update

It's been a month or so since I've written about Sophia. For a chunk of that time, she was at Seattle Children's Hospital being treated for the side-effects of chemo. Today we're celebrating the fact that she's only got ONE more chemotherapy session and then, except for quarterly scans to evaluate for recurrence, she'll be done with it. She and her mother Stacey can really start gearing up for their Hawaii trip.  If any two people have earned a vacation, it's Sophia and Stacey.

(Doesn't she look awesome with her do-rag & tatt?)

 I asked Stacey to share a few words on how things are going in Sophia's world...

Although when you're in my shoes you hate to jinx something, I am pleased to say that Sophia is tolerating her second to last chemo well! As of last Wednesday, she has one remaining treatment to go(likely 2 weeks from now) and we can, God willing, put this cancer crap behind us.
I recall an emergency room Dr. once say as he was looking at the sign on her chart that said 18 of 18(she has 18 huge charts!) "Man, she has been through a lot" I responded quickly with, "I don't keep a tally, I just keep track". At that moment I realized the importance of that statement. See, if I kept a tally, it would not be fair to her, and it would be too much for me. She deserves to wake each day and receive the benefit of the doubt. A fresh start to prove just how strong she is, not some ongoing reminder of times of trial or weakness.
Miss Sophia Grace is a kid you don't want to meet in a dark alley. She can, and will, take you down! Thank you to all who have thought of, prayed for, donated to, smiled at, and pondered the power of the Soph. Please know that it is YOU who gives ME the strength to empower HER to live to her fullest.  For that we are both eternally grateful.
 
Living life to the fullest...that's something we all could do a little more of. One thing that has impressed me since the day Sophia was born is that Stacey has always referred to her problems as "differences", not "disabilities". She has always tried to give Sophia Grace experiences that support and maximize who she is. Obviously that's what every parent wants to do, but when you're accruing 18 thick medical charts in the process, you can imagine the difficulty that Stacey has faced. 

Many of you who are reading this have donated to Team Sophia, helping Stacey with a trip to Hawaii to visit Grandma and Grandpa. It's been humbling to see how generous people can be, and I sincerely thank every one of you who has donated or said a prayer on Sophia's behalf. 
Today I'm going to do something a little different. The video below was created by the staff at Seattle Children's hospital. It shows their heme-onc staff and patients performing the Kelly Clarkson song "Stronger". I'm going to take half of all the money donated to Team Sophia as a result of this post and send it to the SCH Foundation, earmarked for their heme-onc floor. I'm a 20+ year employee of Children's, and I can't watch this video without bawling like a baby. If you can kick in the cost of a fancy coffee beverage, you'll be helping Sophia and Stacey with their Hawaiian vacation AND helping the kids at Seattle Children's. 
Peace,
Liv



 

13 comments:

Firetulip said...

Great post, Liv. So glad to read about Sophia getting better. Enjoyed video, too.

Liv said...

Thanks for checking in, Zrinka, and I appreciate the positive vibes!

Diana Brandmeyer said...

I'm so glad she is getting better and almost finished with chemo.
Diana

Tami Clayton said...

I'm so glad to hear she's almost done with the chemo and is doing relatively well. I hope she and her mother get to go on their trip to Hawaii very soon. Thanks for the update (and the tears!). :)

Liv said...

Thanks Diana & Tami! Sophia spent Easter in the hospital, which was such a drag. Will be SO glad when this phase is over.
;)

Debbie Christiana said...

What an adorable little peanut :) Tough, too. I'm so glad to hear her chemo is coming to an end. As someone who has spent the last few months with a sick dad, due to the side effects of chemo, I couldn't be more thrilled for her and her family.

Go Sophia!!

Sharon Clare said...

What a sweetheart. You said it, we must live every day to the fullest.

So glad to hear Sophia and mom are doing well. They deserve a Hawaiian getaway.

Liv said...

Thanks for checking in, Debbie. I hope your Dad's doing well. I'll be keeping you guys in mind.

Liv said...

Thanks Sharon! Can't wait to post pictures of their vacay...

Christine Hughes said...

Sprung a few tears there. Children are so resilient. I can only send prayers for Little Sophia and her family. Now to go hug my two little men...

LKF said...

Great story. I'm so glad her Chemo treatments are coming to an end and I hope their trip to Hawaii is an amazing trip for all.
Thanks for sharing
Lynda

Liv said...

Thanks for the good wishes, Christine & Lynda. They are very much appreciated!

Patty said...

What a powerful force Stacey is for her daughter! Sophia is truly blessed to have such a mom fighting for and with her as she goes through what no little one should ever have to go through. I will be keeping her in thoughts and prayers.

I am so glad i joined Blogathon2012 because i get to read such powerful blogs like this one!